<![CDATA[Champions for HD Podcast]]>Champions for HD is a nonprofit that fights to aid families and cure Huntington's Disease one family and one voice at a time. Our vision is to fight HD by contributing funds to local research while aiding HD families in need. This podcast will bring you stories from champions within the HD community as well as updates from the professionals in the field. This is a safe place to share freely and support one another. No one fights Huntington's Disease alone. 

]]>https://www.championsforhd.org/Riverside.fm (https://riverside.com)Mon, 02 Nov 2026 17:01:23 GMTFri, 06 Feb 2026 17:00:12 GMT60Shelby Lentz<p>Champions for HD is a nonprofit that fights to aid families and cure Huntington's Disease one family and one voice at a time. Our vision is to fight HD by contributing funds to local research while aiding HD families in need. This podcast will bring you stories from champions within the HD community as well as updates from the professionals in the field. This is a safe place to share freely and support one another. No one fights Huntington's Disease alone. </p>episodicShelby Lentzshelby@championsforhd.orgno<![CDATA[A Raw Conversation About Living Gene Positive - with Charlotte Conn]]>*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.

Follow Champions/External links:
linktr.ee/championsforhd
Website

Follow Shelby:
https://www.shelbylentz.com/
linktr.ee/shelby_lentz

In their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through social media and shared advocacy. They discuss managing anxiety, finding support, and coping mechanisms. The conversation covers HD testing, genetic diagnosis, and its impact on family dynamics. Balancing life choices and finances amidst uncertainty is also explored. They emphasize living in the present, gratitude, and the therapeutic value of music and exercise. Shelby and Charlotte highlight the significance of community, self-care, and supportive partners in navigating life with HD. Additionally, they address challenges like infertility, adoption, and the emotional toll of building a family in the context of HD. Overall, their dialogue underscores the importance of connection, resilience, and shared experiences in facing the complexities of HD.

Support the show

]]>Buzzsprout-14779123Wed, 27 Mar 2024 14:00:00 GMT<p><b>*Trigger warning*</b> This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.<br /><br />Follow Champions/External links:<br /><a href="https://linktr.ee/Championsforhd?utm_source=linktree_profile_share&amp;ltsid=afe9cc91-d80b-4a29-a4c5-f35a9ea439af" rel="noopener noreferrer nofollow"><b>linktr.ee/championsforhd<br /></b></a><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>Website</b><br /></a><br />Follow Shelby:<br /><a href="https://www.youtube.com/redirect?event=video_description&amp;redir_token=QUFFLUhqa0JRWEtyWnRrc3FIdnVWTzZLLUZEWUNTOFpBQXxBQ3Jtc0tuS2h5bi1Bd1BVQ1lvY0txX2RTc3duY2ZkRGhieTBuUEI3bklmMkY5TWhILWxHM1k5RXY2bExvZWNtYjJwalZQRnlnV0RKRHpxbGFMR0tza3l5SkRGZ0Q5R3AyNEN1Qkd5NmdBSVBTeERlcXROSHkwNA&amp;q=https%3A%2F%2Fwww.shelbylentz.com%2F&amp;v=R6pIkiXTU-A" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a><br /><a href="https://linktr.ee/shelby_lentz?utm_source=linktree_profile_share&amp;ltsid=ff89b2b1-35a7-487d-b6c1-87fbe2987d1c" rel="noopener noreferrer nofollow">linktr.ee/shelby_lentz</a><br /><br />In their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through social media and shared advocacy. They discuss managing anxiety, finding support, and coping mechanisms. The conversation covers HD testing, genetic diagnosis, and its impact on family dynamics. Balancing life choices and finances amidst uncertainty is also explored. They emphasize living in the present, gratitude, and the therapeutic value of music and exercise. Shelby and Charlotte highlight the significance of community, self-care, and supportive partners in navigating life with HD. Additionally, they address challenges like infertility, adoption, and the emotional toll of building a family in the context of HD. Overall, their dialogue underscores the importance of connection, resilience, and shared experiences in facing the complexities of HD.</p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:48:3352A Raw Conversation About Living Gene Positive - with Charlotte Connfull<![CDATA[I wrote a children's book! Brave Breanna: How One Girl Smiled Her Way Through Juvenile Huntington's Disease]]>Order Brave Breanna:
https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

Support the show (https://www.championsforhd.org/donate)

Support the show

]]>Buzzsprout-9156898Wed, 08 Sep 2021 02:00:00 GMT<p><b>Order Brave Breanna:</b><br /><a href="https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&amp;keywords=brave+breanna&amp;qid=1631066574&amp;sr=8-1" rel="noopener noreferrer nofollow">https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&amp;keywords=brave+breanna&amp;qid=1631066574&amp;sr=8-1</a><br /><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /></p><p><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow"><b>https://www.shelbylentz.com/</b></a></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no00:22:33213I wrote a children's book! Brave Breanna: How One Girl Smiled Her Way Through Juvenile Huntington's Diseasefull<![CDATA[An Open Conversation About Mental Health & Turning Adversity into Advocacy with @ImNotDrunkLifeStyleBlog]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Today I am joined by one of my dear friends, and fellow Huntington's Disease Advocates, Kyra Ashley Clarke. We discuss mental health with HD as a caregiver, setting boundaries, and talking the opportunity to educate against hurtful HD stereotypes and stigma. Ashley was inspired to begin her blog #ImNotDrunkLifestyleBlog after her father, who suffers from HD, was mistakenly called out in a crowd by a stranger for being "horribly drunk." Now she uses her blog as an outlet for her own mental health and as a learning tool for those who are misinformed about Huntington's Disease.


Follow Ashley:

https://www.facebook.com/imnotdrunkblog/

https://www.imnotdrunklifestyleblog.co.uk/

https://www.instagram.com/imnotdrunklifestyleblog/


Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks



Support the show

]]>Buzzsprout-3779828Sat, 16 May 2020 00:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.</em></b><br /><br />Today I am joined by one of my dear friends, and fellow Huntington's Disease Advocates, Kyra Ashley Clarke. We discuss mental health with HD as a caregiver, setting boundaries, and talking the opportunity to educate against hurtful HD stereotypes and stigma. Ashley was inspired to begin her blog #ImNotDrunkLifestyleBlog after her father, who suffers from HD, was mistakenly called out in a crowd by a stranger for being "horribly drunk." Now she uses her blog as an outlet for her own mental health and as a learning tool for those who are misinformed about Huntington's Disease.</p><p><br /></p><p><b>Follow Ashley:</b></p><p><a href="https://www.facebook.com/imnotdrunkblog/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/imnotdrunkblog/</b></a></p><p><a href="https://www.imnotdrunklifestyleblog.co.uk/" rel="noopener noreferrer nofollow"><b>https://www.imnotdrunklifestyleblog.co.uk/</b></a></p><p><a href="https://www.instagram.com/imnotdrunklifestyleblog/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/imnotdrunklifestyleblog/</b></a></p><p><br /></p><p><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /></p><p><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow"><b>https://www.shelbylentz.com/</b></a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><b><br /></b><br /></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no00:57:1112An Open Conversation About Mental Health & Turning Adversity into Advocacy with @ImNotDrunkLifeStyleBlogfull<![CDATA[The Stages of Huntington's Disease Progression - Growing up with HD Trauma as a Child - With Jessica Geraghty]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Today I am joined by Jessica who shares her tramautic childhood living with her mother, who suffered from HD, and how it effects her currently. She also shares her life living gene positive. Listen to Jessica's full episode to hear more about how she is a Champion for HD!

Order Brave Breanna:
https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1

Follow Domonique:
https://www.instagram.com/niqueclaire2/

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

Support the show (https://www.championsforhd.org/donate)

Support the show

]]>Buzzsprout-9479882Tue, 02 Nov 2021 23:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Today I am joined by Jessica who shares her tramautic childhood living with her mother, who suffered from HD, and how it effects her currently. She also shares her life living gene positive. Listen to Jessica's full episode to hear more about how she is a Champion for HD!<br /><br /><b>Order Brave Breanna:</b><br /><a href="https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&amp;keywords=brave+breanna&amp;qid=1631066574&amp;sr=8-1" rel="noopener noreferrer nofollow">https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&amp;keywords=brave+breanna&amp;qid=1631066574&amp;sr=8-1</a><br /><br /><b>Follow Domonique:<br /></b><a href="https://www.instagram.com/niqueclaire2/" rel="noopener noreferrer nofollow">https://www.instagram.com/niqueclaire2/</a><br /><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /></p><p><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow"><b>https://www.shelbylentz.com/</b></a></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:50:41215The Stages of Huntington's Disease Progression - Growing up with HD Trauma as a Child - With Jessica Geraghtyfull<![CDATA[An Open Conversation about HD Mental Health and Suicide - How to Overcome the Darkness with Domonique Link]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Today I am joined by Domonique who shares her HD testimony. Her mother battled HD and su*cidal ideations. Domonique has tested positive for the disease and shares her life with a positive diagnosis and the importance of mental health in the HD community.

Order Brave Breanna:
https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1

Follow Domonique:
https://www.instagram.com/niqueclaire2/

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

Support the show (https://www.championsforhd.org/donate)

Support the show (https://www.championsforhd.org/donate)

Support the show

]]>Buzzsprout-9212556Fri, 17 Sep 2021 14:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Today I am joined by Domonique who shares her HD testimony. Her mother battled HD and su*cidal ideations. Domonique has tested positive for the disease and shares her life with a positive diagnosis and the importance of mental health in the HD community.<b><em> <br /><br /></em></b><b>Order Brave Breanna:</b><br /><a href="https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&amp;keywords=brave+breanna&amp;qid=1631066574&amp;sr=8-1" rel="noopener noreferrer nofollow">https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&amp;keywords=brave+breanna&amp;qid=1631066574&amp;sr=8-1</a><br /><br /><b>Follow Domonique:<br /></b><a href="https://www.instagram.com/niqueclaire2/" rel="noopener noreferrer nofollow">https://www.instagram.com/niqueclaire2/</a> <br /><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /></p><p><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow"><b>https://www.shelbylentz.com/</b></a></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:02:17214An Open Conversation about HD Mental Health and Suicide - How to Overcome the Darkness with Domonique Linkfull<![CDATA[Are there any benefits to testing for Huntington's Disease?]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Today we are deep diving into potential benefits of getting tested for Huntington's Disease. This question was left as a comment on our social media post today and it gave me the idea to come on here and talk about what benefits I have found about testing myself. This is personal, please do make sure to seek help from a professional as well. Your genetic counselor and therapist are key resources to lean on before you go through the test results. 

Thank you to the woman who left the comment on our post. You inspired this episode! I hope you find this helpful.

Shelby 

'

Support the show

]]>Buzzsprout-8507679Wed, 12 May 2021 16:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Today we are deep diving into potential benefits of getting tested for Huntington's Disease. This question was left as a comment on our social media post today and it gave me the idea to come on here and talk about what benefits I have found about testing myself. This is personal, please do make sure to seek help from a professional as well. Your genetic counselor and therapist are key resources to lean on before you go through the test results. <br /><br />Thank you to the woman who left the comment on our post. You inspired this episode! I hope you find this helpful.<br /><br />Shelby <br /><br />'</p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no00:32:20210Are there any benefits to testing for Huntington's Disease?full<![CDATA[Catching up With Londen & Autumn Tabor - Autumn's Sweet 16 and more!]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease.  Before editing, this was a 3 hour conversation! We had so much fun. We laughed, we cried, but most of all they were so open and vulnerable. JHD is an even rarer form of Huntington's--an already incredible rare disease. Any way that they can find to spread awareness: they do. They never stop fighting.  Londen and Autumn have an impressive 75,000+ viewers on their joint TikTok account where they speak about life with JHD and work to both educate and reform thought on JHD.

I hope you enjoy our conversation.
 
Follow Londen and Autumn:

https://www.instagram.com/londenandautumn/ 

https://www.tiktok.com/@londenandautumn?lang=en

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks

Support the show (https://www.championsforhd.org/donate)



Support the show

]]>Buzzsprout-10370560Sun, 03 Apr 2022 20:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease.  Before editing, this was a 3 hour conversation! We had so much fun. We laughed, we cried, but most of all they were so open and vulnerable. JHD is an even rarer form of Huntington's--an already incredible rare disease. Any way that they can find to spread awareness: they do. They never stop fighting.  Londen and Autumn have an impressive 75,000+ viewers on their joint TikTok account where they speak about life with JHD and work to both educate and reform thought on JHD.<br /><br />I hope you enjoy our conversation.<br /> <br /><b>Follow Londen and Autumn:</b></p><p><a href="https://www.instagram.com/londenandautumn/" rel="noopener noreferrer nofollow">https://www.instagram.com/londenandautumn/ </a></p><p><a href="https://www.tiktok.com/@londenandautumn?lang=en" rel="noopener noreferrer nofollow">https://www.tiktok.com/@londenandautumn?lang=en</a><br /><br /></p><p><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /></p><p><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow"><b>https://www.shelbylentz.com/</b></a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow"><br /></a><br /></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no02:26:5833Catching up With Londen & Autumn Tabor - Autumn's Sweet 16 and more!full<![CDATA[Living Life Gene Positive with Samantha Peterson]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Samantha Peterson joins me to share living her life gene positive with Huntington's Disease: the highs and the lows. She shares how she fights everyday not only for herself, but her children. Listen to the episode to hear more about how Samantha is a Champion for HD!

Order Brave Breanna:
https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1

Follow Samantha:
https://www.instagram.com/samantha_juliannaa/

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

Support the show (https://www.championsforhd.org/donate)



Support the show

]]>Buzzsprout-10328625Mon, 28 Mar 2022 01:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Samantha Peterson joins me to share living her life gene positive with Huntington's Disease: the highs and the lows. She shares how she fights everyday not only for herself, but her children. Listen to the episode to hear more about how Samantha is a Champion for HD!<br /><br /><b>Order Brave Breanna:</b><br /><a href="https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&amp;keywords=brave+breanna&amp;qid=1631066574&amp;sr=8-1" rel="noopener noreferrer nofollow">https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&amp;keywords=brave+breanna&amp;qid=1631066574&amp;sr=8-1</a><br /><br /><b>Follow Samantha:<br /></b><a href="https://www.instagram.com/samantha_juliannaa/" rel="noopener noreferrer nofollow">https://www.instagram.com/samantha_juliannaa/<br /></a><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /></p><p><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow"><b>https://www.shelbylentz.com/</b></a></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow"><br /></a><br /></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:45:3632Living Life Gene Positive with Samantha Petersonfull<![CDATA[Continuing to Fight Back Despite the Onset of Symptoms - Heather Hankard]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Heather is one of our Champions for HD donation recipients. She joins us to share her story with her diagnosis of Huntington's Disease, and how she continues to keep fighting despite having symptoms. She shares the highs and the lows as well as how her donation from Champions for HD has helped her during her battle against HD.

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks


Support the show
https://www.championsforhd.org/donate


Support the show (https://www.championsforhd.org/donate)

Support the show

]]>Buzzsprout-8064974Wed, 03 Mar 2021 02:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Heather is one of our Champions for HD donation recipients. She joins us to share her story with her diagnosis of Huntington's Disease, and how she continues to keep fighting despite having symptoms. She shares the highs and the lows as well as how her donation from Champions for HD has helped her during her battle against HD.<br /><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentz.com/" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><br /></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a><br /><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">https://www.championsforhd.org/donate</a></p><p><br /></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no00:43:4225Continuing to Fight Back Despite the Onset of Symptoms - Heather Hankardfull<![CDATA[HD Family Planning - An Open Conversation About Invitro Fertilization with Megan]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Megan joins me to share her experience with IVF. She was one of the first to receive a grant from the nonprofit, Help Cure HD. Help Cure HD specifically focuses on HD family planning and granting funds for couples who want to do IVF but can't afford to finance It.

Check out them at: https://helpcurehd.org/

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks


Support the show (https://www.championsforhd.org/donate)

Support the show

]]>Buzzsprout-7396213Wed, 20 Jan 2021 19:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Megan joins me to share her experience with IVF. She was one of the first to receive a grant from the nonprofit, Help Cure HD. Help Cure HD specifically focuses on HD family planning and granting funds for couples who want to do IVF but can't afford to finance It. <br /><br />Check out them at: <a href="https://helpcurehd.org/" rel="noopener noreferrer nofollow">https://helpcurehd.org/</a><br /><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentz.com/" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><br /></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no00:52:4622HD Family Planning - An Open Conversation About Invitro Fertilization with Meganfull<![CDATA[There is Still Life Left to Live with Juvenile Huntington's Disease - Londen and Autumn Tabor]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease.  Before editing, this was a 3 hour conversation! We had so much fun. We laughed, we cried, but most of all they were so open and vulnerable. JHD is an even rarer form of Huntington's--an already incredible rare disease. Any way that they can find to spread awareness: they do. They never stop fighting.  Londen and Autumn have an impressive 75,000+ viewers on their joint TikTok account where they speak about life with JHD and work to both educate and reform thought on JHD.

I hope you enjoy our conversation.
 
Follow Londen and Autumn:

https://www.instagram.com/londenandautumn/ 

https://www.tiktok.com/@londenandautumn?lang=en

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks

Support the show (https://www.championsforhd.org/donate)

Support the show

]]>Buzzsprout-8907296Thu, 22 Jul 2021 23:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease.  Before editing, this was a 3 hour conversation! We had so much fun. We laughed, we cried, but most of all they were so open and vulnerable. JHD is an even rarer form of Huntington's--an already incredible rare disease. Any way that they can find to spread awareness: they do. They never stop fighting.  Londen and Autumn have an impressive 75,000+ viewers on their joint TikTok account where they speak about life with JHD and work to both educate and reform thought on JHD. <br /><br />I hope you enjoy our conversation. <br /> <br /><b>Follow Londen and Autumn:</b></p><p><a href="https://www.instagram.com/londenandautumn/" rel="noopener noreferrer nofollow">https://www.instagram.com/londenandautumn/ </a></p><p><a href="https://www.tiktok.com/@londenandautumn?lang=en" rel="noopener noreferrer nofollow">https://www.tiktok.com/@londenandautumn?lang=en</a><br /><br /></p><p><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /></p><p><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow"><b>https://www.shelbylentz.com/</b></a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no02:10:40212There is Still Life Left to Live with Juvenile Huntington's Disease - Londen and Autumn Taborfull<![CDATA[A Year Review of 2021: Over $30,000 Raised! 20 Families Served. Thank you!]]>Order Brave Breanna:
https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1
Brave Breanna Dutch:
https://www.huntington.nl/webwinkel/voor-kinderen.html

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/

Tell Us Your Story: https://www.championsforhd.org/tell-us-your-story
Social Media Ambassador App: https://www.championsforhd.org/social-media-ambassador
Annual Reports: https://www.championsforhd.org/annual-reports


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/ 


Support the show (https://www.championsforhd.org/donate)


Support the show

]]>Buzzsprout-9832222Wed, 05 Jan 2022 00:00:00 GMT<p><b>Order Brave Breanna:</b><br /><a href="https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&amp;keywords=brave+breanna&amp;qid=1631066574&amp;sr=8-1" rel="noopener noreferrer nofollow">https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&amp;keywords=brave+breanna&amp;qid=1631066574&amp;sr=8-1</a><br /><b>Brave Breanna Dutch:</b> <br /><a href="https://www.huntington.nl/webwinkel/voor-kinderen.html?fbclid=IwAR16D4zNuuYeurk8ctyu7VMrmyypo8efhpxvtlHZxqvTe-NdMV4q80Ou9_o" rel="noopener noreferrer nofollow">https://www.huntington.nl/webwinkel/voor-kinderen.html</a><br /><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><b>Tell Us Your Story</b>: <a href="https://www.championsforhd.org/tell-us-your-story" rel="noopener noreferrer nofollow">https://www.championsforhd.org/tell-us-your-story</a><br /><b>Social Media Ambassador App</b>: <a href="https://www.championsforhd.org/social-media-ambassador" rel="noopener noreferrer nofollow">https://www.championsforhd.org/social-media-ambassador</a><br /><b>Annual Reports: </b><a href="https://www.championsforhd.org/annual-reports" rel="noopener noreferrer nofollow">https://www.championsforhd.org/annual-reports</a></p><p><br /><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow"><b>https://www.shelbylentz.com/</b></a><b> <br /><br /></b><br /></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><br /></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no00:42:3131A Year Review of 2021: Over $30,000 Raised! 20 Families Served. Thank you!full<![CDATA[The Power of Your Mind - Overcoming Fear with Matt Szendrei]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Matt joins me for an in-depth conversation about life with Huntington's Disease and overcoming the lingering fear that comes with It. After being diagnosed recently himself, he sees life In an entirely new perspective now that has made him grateful for every day.

Follow Matt:
https://www.instagram.com/the.real.matt.zen/


Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks



Support the show (https://www.championsforhd.org/donate)

Support the show

]]>Buzzsprout-5896021Wed, 14 Oct 2020 18:00:00 GMT<strong><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></strong>Matt joins me for an in-depth conversation about life with Huntington's Disease and overcoming the lingering fear that comes with It. After being diagnosed recently himself, he sees life In an entirely new perspective now that has made him grateful for every day.<br /><br /><strong>Follow Matt:<br /></strong><a href="https://www.instagram.com/jessica_robb/" rel="noopener noreferrer nofollow"><strong>https://www.instagram.com/the.real.matt.zen/</strong></a><strong><br /><br /></strong><br /><strong>Follow Champions:<br /></strong><br /><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><strong>https://www.championsforhd.org/<br /></strong></a><br /><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><strong>https://www.instagram.com/championsforhd/<br /></strong></a><br /><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><strong>https://www.facebook.com/championsforhd/<br /></strong></a><br /><br /><strong>Follow Shelby:<br /></strong><br /><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><strong>https://www.instagram.com/shelby_lentz/<br /></strong></a><br /><a href="https://www.shelbylentz.com/" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/<br /></a><br /><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><strong>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks<br /></strong></a><br /><strong><br /></strong><br /><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)<br /><br /><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no00:45:5814The Power of Your Mind - Overcoming Fear with Matt Szendreifull<![CDATA[A Conversation with @ImNotDrunkLifeStyleBlog]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Today I am joined by one of my dear friends, and fellow Huntington's Disease Advocates, Kyra Ashley Clarke for the second time. She was our first podcast guest, a Champions for HD Ambassador, and our current 2020 Champion for HD. Ashley was inspired to begin her blog #ImNotDrunkLifestyleBlog after her father, who suffers from HD, was mistakenly called out in a crowd by a stranger for being "horribly drunk." Now she uses her blog as an outlet for her own mental health and as a learning tool for those who are misinformed about Huntington's Disease.


Follow Ashley:

https://www.facebook.com/imnotdrunkblog/

https://www.imnotdrunklifestyleblog.co.uk/

https://www.instagram.com/imnotdrunklifestyleblog/


Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks

Support the show

]]>Buzzsprout-8827333Wed, 07 Jul 2021 18:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /></em></b><br />Today I am joined by one of my dear friends, and fellow Huntington's Disease Advocates, Kyra Ashley Clarke for the second time. She was our first podcast guest, a Champions for HD Ambassador, and our current 2020 Champion for HD. Ashley was inspired to begin her blog #ImNotDrunkLifestyleBlog after her father, who suffers from HD, was mistakenly called out in a crowd by a stranger for being "horribly drunk." Now she uses her blog as an outlet for her own mental health and as a learning tool for those who are misinformed about Huntington's Disease.</p><p><br /></p><p><b>Follow Ashley:</b></p><p><a href="https://www.facebook.com/imnotdrunkblog/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/imnotdrunkblog/</b></a></p><p><a href="https://www.imnotdrunklifestyleblog.co.uk/" rel="noopener noreferrer nofollow"><b>https://www.imnotdrunklifestyleblog.co.uk/</b></a></p><p><a href="https://www.instagram.com/imnotdrunklifestyleblog/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/imnotdrunklifestyleblog/</b></a></p><p><br /></p><p><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /></p><p><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow"><b>https://www.shelbylentz.com/</b></a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:28:32211A Conversation with @ImNotDrunkLifeStyleBlogfull<![CDATA[Megan's in vitro fertilization ...SUCCESS!!! She's having a ?!]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Megan returns to share her PREGNANCY from IVF! This means her baby will be HD FREE! What a blessing!!

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks


Support the show
https://www.championsforhd.org/donate

Support the show

]]>Buzzsprout-8159173Wed, 17 Mar 2021 16:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Megan returns to share her PREGNANCY from IVF! This means her baby will be HD FREE! What a blessing!! <br /><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentz.com/" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><br /></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a><br /><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">https://www.championsforhd.org/donate</a></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no00:33:2127Megan's in vitro fertilization ...SUCCESS!!! She's having a ?!full<![CDATA[Normalizing Grief...My Sister Would've Been 15]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

My sister would've been 15 years old this month. Last Wednesday, February 17th was her birthday and the first one our family has spent without her. It's been nearly a year since she passed of Juvenile Huntington's Disease and the grieving has been an emotional rollercoaster that still continues. In this episode I get open and honest about grieving in any capacity and the emotions that arise within it.

Happy heavenly birthday, Bre.

Brave Breanna Tribute Video:
https://www.youtube.com/watch?v=qMjEAKja9qQ&t=1678s

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks


Support the show
https://www.championsforhd.org/donate


Support the show

]]>Buzzsprout-8015972Tue, 23 Feb 2021 19:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>My sister would've been 15 years old this month. Last Wednesday, February 17th was her birthday and the first one our family has spent without her. It's been nearly a year since she passed of Juvenile Huntington's Disease and the grieving has been an emotional rollercoaster that still continues. In this episode I get open and honest about grieving in any capacity and the emotions that arise within it. <br /><br />Happy heavenly birthday, Bre. <br /><br /><b>Brave Breanna Tribute Video:<br /></b><a href="https://www.youtube.com/watch?v=qMjEAKja9qQ&amp;t=1678s" rel="noopener noreferrer nofollow">https://www.youtube.com/watch?v=qMjEAKja9qQ&amp;t=1678s</a><br /><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentz.com/" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><br /></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> <br /><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">https://www.championsforhd.org/donate</a></p><p><br /></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no00:48:3724Normalizing Grief...My Sister Would've Been 15full<![CDATA[Healing from HD Family Trauma & the Impact of a Negative Diagnosis - Ashley Yerby]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Ashley joins me to be completely raw in her experience with Huntington's Disease. After a toxic relationship with her mother, who has the disease, receiving a negative diagnosis, and battling mental health, Ashley has overcome them all while being open with the community about her struggles.

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks



Support the show (https://www.championsforhd.org/donate)

Support the show

]]>Buzzsprout-6881210Wed, 16 Dec 2020 19:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.</em></b> <br /><br />Ashley joins me to be completely raw in her experience with Huntington's Disease. After a toxic relationship with her mother, who has the disease, receiving a negative diagnosis, and battling mental health, Ashley has overcome them all while being open with the community about her struggles. <br /><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentz.com/" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><b><br /></b><br /></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:10:1316Healing from HD Family Trauma & the Impact of a Negative Diagnosis - Ashley Yerbyfull<![CDATA[Telling Your Story Matters with Heather & Nathan Wilmoth]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Today I talk with Heather and Nathan Thurgood and discuss their advocacy In the Huntington's Disease community. Nathan Is living with HD and Heather Is his biggest supporter, cheerleader, and advocate. Together they have been able to raise awareness and Impact so many lives through participating In clinical trials, speaking at events, and sharing their journey with HD anywhere and everywhere they can. They truly are champions for Huntington's Disease and are changing the world one day at a time. They gave me so much hope and happiness In our conversation together. I hope you enjoy It as much as I did.

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks



Support the show (https://www.championsforhd.org/donate)

Support the show

]]>Buzzsprout-5996731Wed, 21 Oct 2020 13:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Today I talk with Heather and Nathan Thurgood and discuss their advocacy In the Huntington's Disease community. Nathan Is living with HD and Heather Is his biggest supporter, cheerleader, and advocate. Together they have been able to raise awareness and Impact so many lives through participating In clinical trials, speaking at events, and sharing their journey with HD anywhere and everywhere they can. They truly are champions for Huntington's Disease and are changing the world one day at a time. They gave me so much hope and happiness In our conversation together. I hope you enjoy It as much as I did. <br /><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentz.com/" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><b><br /></b><br /></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:19:1615Telling Your Story Matters with Heather & Nathan Wilmothfull<![CDATA[Having Hope and Faith with Huntington's Disease with Evonne Corrales]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Today I am joined by Evonne. She is 32 years old and living with Huntington’s. She works as the Director of Youth and Childhood Ministries at a Catholic school in Indiana. She is also a Champions for HD 2021 Social Media Ambassador. A year ago, when she moved to Albany, she began to nice the first symptoms of HD. She remembers crying after she fell down the stairs the first time. She is noticing many things that used to be easy to her now feel like a challenge. However, she chooses hope. Her faith in God and her purpose is helping her through her HD.


Follow Evonne: 
https://www.instagram.com/evonnecorrales/

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks


Support the show
https://www.championsforhd.org/donate


Support the show

]]>Buzzsprout-8406640Mon, 26 Apr 2021 17:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Today I am joined by Evonne. She is 32 years old and living with Huntington’s. She works as the Director of Youth and Childhood Ministries at a Catholic school in Indiana. She is also a Champions for HD 2021 Social Media Ambassador. A year ago, when she moved to Albany, she began to nice the first symptoms of HD. She remembers crying after she fell down the stairs the first time. She is noticing many things that used to be easy to her now feel like a challenge. However, she chooses hope. Her faith in God and her purpose is helping her through her HD.</p><p><br /></p><p><b>Follow Evonne:</b>  <br /><a href="https://www.instagram.com/evonnecorrales/" rel="noopener noreferrer nofollow">https://www.instagram.com/evonnecorrales/</a><br /><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentz.com/" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><br /></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a><br /><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">https://www.championsforhd.org/donate</a></p><p><br /></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:19:1829Having Hope and Faith with Huntington's Disease with Evonne Corralesfull<![CDATA[Welcome to the Champions for HD Podcast]]>Welcome to our official Champions for HD Podcast. We are a nonprofit organization fighting to aid families and cure Huntington's Disease one family and one voice at a time. My name Is Shelby Lentz and I began Champions for HD In 2018 to help other families, like mine, who have battled this disease head on. When I was diagnosed In 2017, I made It my mission to not be a victim, but to use my own journey as a tool to raise awareness and funds to cure this horrible disease.

I love Rocky Balboa and his words still Inspire me to this day to keep fighting:
"You, me, or nobody is gonna hit as hard as life. But it ain't about how hard you hit. It's about how hard you can get hit and keep moving forward; how much you can take and keep moving forward. That's how winning is done!"

I hope this podcast will not only raise awareness, but bring a sense of hope in knowing you are not alone In this battle.

Love always,
Shelby Olivia Lentz

Socials:
@championsforhd
@shelby_lentz

Website:
Champions: https://www.championsforhd.org/
Shelby: https://www.shelbylentz.com/

Original Music:
https://music.apple.com/us/artist/shelby-lentz/1129492072
https://open.spotify.com/artist/57wAMWBm8YAtQQteMf7pBk
https://www.amazon.com/Shelby-Lentz/dp/B01HRA1AR2

Support the show

]]>Buzzsprout-3763547Fri, 15 May 2020 02:00:00 GMT<p>Welcome to our official Champions for HD Podcast. We are a nonprofit organization fighting to aid families and cure Huntington's Disease one family and one voice at a time. My name Is Shelby Lentz and I began Champions for HD In 2018 to help other families, like mine, who have battled this disease head on. When I was diagnosed In 2017, I made It my mission to not be a victim, but to use my own journey as a tool to raise awareness and funds to cure this horrible disease. <br /><br />I love Rocky Balboa and his words still Inspire me to this day to keep fighting: <br /><em>"You, me, or nobody is gonna hit as hard as life. But it ain't about how hard you hit. It's about how hard you can get hit and keep moving forward; how much you can take and keep moving forward. That's how winning is done!"<br /><br /></em>I hope this podcast will not only raise awareness, but bring a sense of hope in knowing you are not alone In this battle. <br /><br />Love always, <br />Shelby Olivia Lentz<br /><br />Socials: <br />@championsforhd<br />@shelby_lentz<br /><br />Website: <br />Champions: <a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow">https://www.championsforhd.org/</a><br />Shelby: <a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a><br /><br />Original Music: <br /><a href="https://music.apple.com/us/artist/shelby-lentz/1129492072" rel="noopener noreferrer nofollow">https://music.apple.com/us/artist/shelby-lentz/1129492072</a><br /><a href="https://open.spotify.com/artist/57wAMWBm8YAtQQteMf7pBk" rel="noopener noreferrer nofollow">https://open.spotify.com/artist/57wAMWBm8YAtQQteMf7pBk</a><br /><a href="https://www.amazon.com/Shelby-Lentz/dp/B01HRA1AR2" rel="noopener noreferrer nofollow">https://www.amazon.com/Shelby-Lentz/dp/B01HRA1AR2</a></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no00:05:2211Welcome to the Champions for HD Podcastfull<![CDATA[Being a Caregiver for Juvenile Huntington's Disease with Marie]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Welcome back to the show. I first want to apologize for the delay in episodes. I ended up coming down with COVID a few weeks ago and I had it pretty badly. Thankfully I am feeling much better now, just fighting off severe fatigue, but I hear that can last a while.

Today’s guest really hit me in my emotions. Marie and her son Josh have been completely on their own for years now. Marie’s husband suffers from Huntington’s and has been in his later stages for a while now. Unfortunately he has distanced himself and cut off communication between Marie and Josh. Josh recently was diagnosed with Juvenile HD and it has been emotionally, physically, and financially taxing on them. 

They live alone and have no outside support from either side of their family. When they reached out to Champions for HD through our help forum, she expressed they were in dire need of financial assistance due to having to live out of a hotel. With the pandemic, the traditional housing resources for these situations are shut down and on hold. 

Thanks to your donations, we were able to raise $1,300 for them to help them pay for their entire next month of living expenses.

Despite these difficult circumstances, they both continue to fight. Marie is focused on being the best care giver she can to Josh and their story really hits the soul.


Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks


Support the show
https://www.championsforhd.org/donate

Support the show

]]>Buzzsprout-8328373Tue, 13 Apr 2021 17:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Welcome back to the show. I first want to apologize for the delay in episodes. I ended up coming down with COVID a few weeks ago and I had it pretty badly. Thankfully I am feeling much better now, just fighting off severe fatigue, but I hear that can last a while.</p><p>Today’s guest really hit me in my emotions. Marie and her son Josh have been completely on their own for years now. Marie’s husband suffers from Huntington’s and has been in his later stages for a while now. Unfortunately he has distanced himself and cut off communication between Marie and Josh. Josh recently was diagnosed with Juvenile HD and it has been emotionally, physically, and financially taxing on them. </p><p>They live alone and have no outside support from either side of their family. When they reached out to Champions for HD through our help forum, she expressed they were in dire need of financial assistance due to having to live out of a hotel. With the pandemic, the traditional housing resources for these situations are shut down and on hold. </p><p>Thanks to your donations, we were able to raise $1,300 for them to help them pay for their entire next month of living expenses.</p><p>Despite these difficult circumstances, they both continue to fight. Marie is focused on being the best care giver she can to Josh and their story really hits the soul.</p><p><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentz.com/" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><br /></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a><br /><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">https://www.championsforhd.org/donate</a></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:10:1728Being a Caregiver for Juvenile Huntington's Disease with Mariefull<![CDATA[Reflecting on Her Father's Journey with HD - Loren Holifield]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Loren joins me to share her father's journey of life before HD, after his initial diagnosis, and current life with him being in a nursing home. Despite the hardship, she continues to hold on to her favorite memories of him while also creating new ones. Her story will definitely make your heart warm.

Follow Loren:
https://www.instagram.com/lorenholifield/

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks


Support the show
https://www.championsforhd.org/donate

Support the show

]]>Buzzsprout-8114996Wed, 10 Mar 2021 15:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Loren joins me to share her father's journey of life before HD, after his initial diagnosis, and current life with him being in a nursing home. Despite the hardship, she continues to hold on to her favorite memories of him while also creating new ones. Her story will definitely make your heart warm.<br /><br /><b>Follow Loren:</b><br /><a href="https://www.instagram.com/lorenholifield/" rel="noopener noreferrer nofollow">https://www.instagram.com/lorenholifield/</a><br /><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentz.com/" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><br /></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a><br /><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">https://www.championsforhd.org/donate</a></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no00:52:5826Reflecting on Her Father's Journey with HD - Loren Holifieldfull<![CDATA[Be a Warrior Not a Worrier - Be Brave With Barb]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Our first episode of 2021! Brittany Johnson joins us to talk about her family overcoming her mother's diagnosis of Huntington's Disease in 2018 and how they are living their lives to the fullest despite having HD In the family.

Please share this episode and leave us a review.

Follow Britney and her blog:

@bebravewithbarb_hdawareness
https://www.instagram.com/bebravewithbarb_hdawareness/

Ourjourneythroughhd.wordpress.com

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks


Support the show (https://www.championsforhd.org/donate)

Support the show

]]>Buzzsprout-7193947Fri, 08 Jan 2021 16:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Our first episode of 2021! Brittany Johnson joins us to talk about her family overcoming her mother's diagnosis of Huntington's Disease in 2018 and how they are living their lives to the fullest despite having HD In the family. <br /><br />Please share this episode and leave us a review.<br /><br /><b>Follow Britney and her blog:</b></p><p>@bebravewithbarb_hdawareness<br /><a href="https://www.instagram.com/bebravewithbarb_hdawareness/" rel="noopener noreferrer nofollow">https://www.instagram.com/bebravewithbarb_hdawareness/</a></p><p><a href="http://Ourjourneythroughhd.wordpress.com" rel="noopener noreferrer nofollow">Ourjourneythroughhd.wordpress.com</a><br /><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentz.com/" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><br /></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:14:5621Be a Warrior Not a Worrier - Be Brave With Barbfull<![CDATA[Testing, Finding Support, and Mental Health with HD - With Jenna Woodard]]>*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.

In this conversation, Jenna Woodard shares her experience with Huntington's disease (HD) in her family. She discusses her first memory of HD and how she found out about her own diagnosis. Jenna also talks about the negative testing process she went through and the lack of support and information she received. She shares the challenges of living with a parent who has HD and the difficulties in convincing them to seek help. Lastly, she discusses the importance of sharing personal experiences and dealing with negativity. In this conversation, Shelby and Jenna discuss various topics related to living with Huntington's disease. They talk about dealing with insensitive comments and the importance of not engaging with negativity. They also share their experiences of being open about their condition and the support they have received from the HD community. The conversation touches on the challenges of starting a family when living with HD and the process of applying for in vitro fertilization. They also discuss mental health and coping strategies, emphasizing the importance of finding support and community.


Follow Champions/External links:
linktr.ee/championsforhd
Website

Follow Shelby:
https://www.shelbylentz.com/
linktr.ee/shelby_lentz

Support the show

Support the show

]]>Buzzsprout-14498194Thu, 15 Feb 2024 03:00:00 GMT<p><b>*Trigger warning*</b> This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.<br /><b><br /></b>In this conversation, Jenna Woodard shares her experience with Huntington's disease (HD) in her family. She discusses her first memory of HD and how she found out about her own diagnosis. Jenna also talks about the negative testing process she went through and the lack of support and information she received. She shares the challenges of living with a parent who has HD and the difficulties in convincing them to seek help. Lastly, she discusses the importance of sharing personal experiences and dealing with negativity. In this conversation, Shelby and Jenna discuss various topics related to living with Huntington's disease. They talk about dealing with insensitive comments and the importance of not engaging with negativity. They also share their experiences of being open about their condition and the support they have received from the HD community. The conversation touches on the challenges of starting a family when living with HD and the process of applying for in vitro fertilization. They also discuss mental health and coping strategies, emphasizing the importance of finding support and community.</p><p><br />Follow Champions/External links:<br /><a href="https://linktr.ee/Championsforhd?utm_source=linktree_profile_share&amp;ltsid=afe9cc91-d80b-4a29-a4c5-f35a9ea439af" rel="noopener noreferrer nofollow"><b>linktr.ee/championsforhd<br /></b></a><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>Website</b><br /></a><br />Follow Shelby:<br /><a href="https://www.youtube.com/redirect?event=video_description&amp;redir_token=QUFFLUhqa0JRWEtyWnRrc3FIdnVWTzZLLUZEWUNTOFpBQXxBQ3Jtc0tuS2h5bi1Bd1BVQ1lvY0txX2RTc3duY2ZkRGhieTBuUEI3bklmMkY5TWhILWxHM1k5RXY2bExvZWNtYjJwalZQRnlnV0RKRHpxbGFMR0tza3l5SkRGZ0Q5R3AyNEN1Qkd5NmdBSVBTeERlcXROSHkwNA&amp;q=https%3A%2F%2Fwww.shelbylentz.com%2F&amp;v=R6pIkiXTU-A" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a><br /><a href="https://linktr.ee/shelby_lentz?utm_source=linktree_profile_share&amp;ltsid=ff89b2b1-35a7-487d-b6c1-87fbe2987d1c" rel="noopener noreferrer nofollow">linktr.ee/shelby_lentz</a></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:08:3051Testing, Finding Support, and Mental Health with HD - With Jenna Woodardfull<![CDATA[Forgiveness, Grief & the Afterlife with Delaney Lentz]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

I am joined by my sister, Delaney, to talk about Huntington's Disease in our family from her perspective. She is a sophomore in college and living at-risk for the disease. We talk about overcoming trauma with forgiveness, and grieving the loss of someone from HD, as we lost our 14-year old sister to it last year, and the afterlife.

Follow Laney: https://www.instagram.com/laney.lentz/

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks


Support the show (https://www.championsforhd.org/donate)


Support the show

]]>Buzzsprout-7695652Fri, 05 Feb 2021 16:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>I am joined by my sister, Delaney, to talk about Huntington's Disease in our family from her perspective. She is a sophomore in college and living at-risk for the disease. We talk about overcoming trauma with forgiveness, and grieving the loss of someone from HD, as we lost our 14-year old sister to it last year, and the afterlife.<br /><br /><b>Follow Laney</b>: <a href="https://www.instagram.com/laney.lentz/" rel="noopener noreferrer nofollow">https://www.instagram.com/laney.lentz/</a> <br /><br /><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentz.com/" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><br /></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><br /></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:20:0723Forgiveness, Grief & the Afterlife with Delaney Lentzfull<![CDATA[Living Gene Positive in a Relationship - with Sarah and Brandon]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Today I sit down with Sarah and Brandon, a couple who are battling HD. Brandon was diagnosed with HD a few years back. They talk about the highs, the lows, and the importance of a strong foundation and partner in a relationship with HD.

I hope you enjoy our conversation!

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks

Support the show (https://www.championsforhd.org/donate)



Support the show

Support the show

]]>Buzzsprout-10612240Fri, 13 May 2022 14:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Today I sit down with Sarah and Brandon, a couple who are battling HD. Brandon was diagnosed with HD a few years back. They talk about the highs, the lows, and the importance of a strong foundation and partner in a relationship with HD.<br /><br />I hope you enjoy our conversation!</p><p><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /></p><p><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow"><b>https://www.shelbylentz.com/</b></a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> (https://www.championsforhd.org/donate)</p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow"><br /></a><br /></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:26:2134Living Gene Positive in a Relationship - with Sarah and Brandonfull<![CDATA["You Only Get one Life...Find Joy" Finding Light in the Darkness of Living with HD with Kevin Bailey]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Today I sit down Kevin Bailey. Kevin is living with Huntington's Disease and lost his mother to it in a tragic way. Kevin was one of our first donations in 2018 when we became an official 501c3 nonprofit. It was an honor to be able to share his story on our show.

I hope you enjoy our conversation!

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/

Subscribe to Kevin's YouTube Channel:
https://www.youtube.com/user/backonmyish

Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks

Support the show 

Support the show

]]>Buzzsprout-11188154Tue, 23 Aug 2022 13:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Today I sit down Kevin Bailey. Kevin is living with Huntington's Disease and lost his mother to it in a tragic way. Kevin was one of our first donations in 2018 when we became an official 501c3 nonprofit. It was an honor to be able to share his story on our show.<br /><br />I hope you enjoy our conversation!</p><p><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p>Subscribe to Kevin's YouTube Channel:<br /><a href="https://www.youtube.com/user/backonmyish" rel="noopener noreferrer nofollow">https://www.youtube.com/user/backonmyish</a></p><p><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow"><b>https://www.shelbylentz.com/</b></a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> </p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>yes01:10:0835"You Only Get one Life...Find Joy" Finding Light in the Darkness of Living with HD with Kevin Baileyfull<![CDATA[Losing a Spouse With Huntingon's Disease with Amy Abbott]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Today I sit down Amy Abbott. Amy lost her husband, Jody, to Huntington's Disease. Jody was a musician and had a true love for music. Amy shares the dark moments her and her children had to go through behind the scenes as Jody's HD unfortunately progressed. She is sharing the good, the bad, and the ugly of caregiving. Amy is also our Champion for HD Caregiver for 2022. She was nominated and received the award last year.

I hope you enjoy our conversation!

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/

Subscribe to Kevin's YouTube Channel:
https://www.youtube.com/user/backonmyish

Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks

Support the show 

Support the show

Support the show

]]>Buzzsprout-12569170Sun, 02 Apr 2023 17:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br /></em></b>Today I sit down Amy Abbott. Amy lost her husband, Jody, to Huntington's Disease. Jody was a musician and had a true love for music. Amy shares the dark moments her and her children had to go through behind the scenes as Jody's HD unfortunately progressed. She is sharing the good, the bad, and the ugly of caregiving. Amy is also our Champion for HD Caregiver for 2022. She was nominated and received the award last year.<br /><br />I hope you enjoy our conversation!</p><p><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p>Subscribe to Kevin's YouTube Channel:<br /><a href="https://www.youtube.com/user/backonmyish" rel="noopener noreferrer nofollow">https://www.youtube.com/user/backonmyish</a></p><p><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow"><b>https://www.shelbylentz.com/</b></a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a> </p><p><a href="https://www.championsforhd.org/donate" rel="noopener noreferrer nofollow">Support the show</a></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:20:1541Losing a Spouse With Huntingon's Disease with Amy Abbottfull<![CDATA[Championing Your Life Through a Positive Diagnosis with Jessica Robbins]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Today, Jessica Robbins and I discuss both of our journeys of testing for Huntington's Disease. We each received a positive diagnosis that changed our lives forever. Jessica shares her trials and triumphs with HD leading up to her testing process, and how she is conquering life post-positive diagnosis. She is a true champion, and I hope her story and strength inspire you as they inspire me.

Follow Jessica:
https://www.instagram.com/jessica_robb/

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks



Support the show

]]>Buzzsprout-3901898Mon, 25 May 2020 03:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.</em></b><br /><br />Today, Jessica Robbins and I discuss both of our journeys of testing for Huntington's Disease. We each received a positive diagnosis that changed our lives forever. Jessica shares her trials and triumphs with HD leading up to her testing process, and how she is conquering life post-positive diagnosis. She is a true champion, and I hope her story and strength inspire you as they inspire me. <br /><br /><b>Follow Jessica:<br /></b><a href="https://www.instagram.com/jessica_robb/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/jessica_robb/</b></a><b><br /></b><br /></p><p><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow"><b>https://www.shelbylentz.com/</b></a></p><p><a href="https://www.facebook.com/shelbylentzmusic/?ref=bookmarks" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/shelbylentzmusic/?ref=bookmarks</b></a></p><p><b><br /></b><br /></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no00:39:1513Championing Your Life Through a Positive Diagnosis with Jessica Robbinsfull<![CDATA[The Champions for HD Podcast - Speech-Language Pathology with Paige Wikman]]>*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

If you are interested in participating or would like to know more about this study, click here: https://www.championsforhd.org/research to schedule a time with Paige or email her at (wikman.p@northeastern.edu) 

Spotify Podcast Link: https://open.spotify.com/show/0UsVV0F...

Apple Podcast Link: https://podcasts.apple.com/us/podcast...

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsfo...

https://www.facebook.com/championsforhd/

Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

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]]>Buzzsprout-12659837Sun, 16 Apr 2023 18:00:00 GMT<p><b>*Trigger warning*</b> This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /><br />If you are interested in participating or would like to know more about this study, click here: <a href="https://www.championsforhd.org/research" rel="noopener noreferrer nofollow">https://www.championsforhd.org/research</a> to schedule a time with Paige or email her at (wikman.p@northeastern.edu)  <br /><br />Spotify Podcast Link: <a href="https://www.youtube.com/redirect?event=video_description&amp;redir_token=QUFFLUhqbjFRSFREOEVxVWhTY0NGbzBTQTBrVHhGRzAzZ3xBQ3Jtc0tsMlRyVnNlcC1IYU1NYzlvc1MtcDJCTXM0bWgzdE03bmRsaFY2WHNOVlJnSlJDZE5zQl90ZHBYbGFfZkJqVloyWUhkOVZMcGNNSVNrX2VSOVZzMk9Ccm9iR01wazg4aWRwRDhaenJ6WkZRZG1xV0NjUQ&amp;q=https%3A%2F%2Fopen.spotify.com%2Fshow%2F0UsVV0F9pkiPB4wtku6cJV%3Fsi%3DAxJsP7iUTF-L3AkBI5KYuw%26nd%3D1&amp;v=R6pIkiXTU-A" rel="noopener noreferrer nofollow">https://open.spotify.com/show/0UsVV0F...</a><br /><br />Apple Podcast Link: <a href="https://www.youtube.com/redirect?event=video_description&amp;redir_token=QUFFLUhqbDFWSDNSV3YxLVFMTXBueXFaWFI2QU44SGtwZ3xBQ3Jtc0ttR191MWlZX0VOVXM1bWl4YTZJNDRwVjlfN0JZNEw4RGs1XzFkY0pxRVVMeU02RWpHYWpaS2VMR0VrdmJKbFpvcUh4M2dzanBPLTQ4Y2E5ek9Tb0dNNHpubi1KSVVGc241ekZULWtRcHpTVi1lTG1FQQ&amp;q=https%3A%2F%2Fpodcasts.apple.com%2Fus%2Fpodcast%2Fchampions-for-hd-podcast%2Fid1513502656&amp;v=R6pIkiXTU-A" rel="noopener noreferrer nofollow">https://podcasts.apple.com/us/podcast...</a><br /><br />Follow Champions:<br /><br /><a href="https://www.youtube.com/redirect?event=video_description&amp;redir_token=QUFFLUhqbDAyNVZlcXp5YnZmMlMySnhKMkZJYUpuZ1VaUXxBQ3Jtc0ttODdHYzd3eXZtTlRIeE9fNWpkdld0V1RkdnJiSHlaSzRhN3ppOTFXbEdSTkdjN0RIdHRhaGlldXF6RGVhWFNEOHdnQXY3al93MWtfRlJrc0VLbzNlMGx1bHFqS0ZOU2R4T012bHFYZHYzdXlOd21XZw&amp;q=https%3A%2F%2Fwww.championsforhd.org%2F&amp;v=R6pIkiXTU-A" rel="noopener noreferrer nofollow">https://www.championsforhd.org/</a><br /><br /><a href="https://www.youtube.com/redirect?event=video_description&amp;redir_token=QUFFLUhqbVlOWWVnY0VpemdPMzFoNzdCQUVtNkR2b1RnZ3xBQ3Jtc0tsNlFqc2NvTkZJOFpvVFRMY2l5NXpJZ0ZNQ3FCcE52YjZWSnM5U3VCWnNSOGQyaF9LN1hQeERaSTVPWk45LVljNkVESmVIV0dQTUZySkRJbHFkMk4xZGRFTFpTVTN6TkdoZWhpRzYwU2NyRXFmeGdoVQ&amp;q=https%3A%2F%2Fwww.instagram.com%2Fchampionsforhd%2F&amp;v=R6pIkiXTU-A" rel="noopener noreferrer nofollow">https://www.instagram.com/championsfo...</a><br /><br /><a href="https://www.youtube.com/redirect?event=video_description&amp;redir_token=QUFFLUhqbmhHb05tZHFKOGxkSnhqYThuY0UyMWsxSVotQXxBQ3Jtc0tsUlhmazdKM0haR0NVX0lMTzlseWY2SFlOdUlkUnJEQkdhaTFZVGhGRVNmMXhLUTd1cWhZWjVTaEhKcE80VDJGZDlvaHhiLUZGMTdXS2JzWnZ3Wk5KUkI5TVVDV09QY2NLX0ozbUJsUTB2YTB6eHhhdw&amp;q=https%3A%2F%2Fwww.facebook.com%2Fchampionsforhd%2F&amp;v=R6pIkiXTU-A" rel="noopener noreferrer nofollow">https://www.facebook.com/championsforhd/</a><br /><br />Follow Shelby:<br /><br /><a href="https://www.youtube.com/redirect?event=video_description&amp;redir_token=QUFFLUhqbEdfSTlhQnFmTGdndFFTcUZHSU5Rc3EzS0VXd3xBQ3Jtc0tsTjIybWR4a2d4RnNZZlRRUmhRUmJlRmdBVnJHOWJZcUR4RVRzei1BRFAtMzhhOERlemYzNDdHRjFDVkNWYlFnV1FqU25CaGhnY0pZV3d3bXVNQUxSOV92QUtyYk1rSUZrUkdoUHloVUlsZ0NnSFR2Yw&amp;q=https%3A%2F%2Fwww.instagram.com%2Fshelby_lentz%2F&amp;v=R6pIkiXTU-A" rel="noopener noreferrer nofollow">https://www.instagram.com/shelby_lentz/</a><br /><br /><a href="https://www.youtube.com/redirect?event=video_description&amp;redir_token=QUFFLUhqa0JRWEtyWnRrc3FIdnVWTzZLLUZEWUNTOFpBQXxBQ3Jtc0tuS2h5bi1Bd1BVQ1lvY0txX2RTc3duY2ZkRGhieTBuUEI3bklmMkY5TWhILWxHM1k5RXY2bExvZWNtYjJwalZQRnlnV0RKRHpxbGFMR0tza3l5SkRGZ0Q5R3AyNEN1Qkd5NmdBSVBTeERlcXROSHkwNA&amp;q=https%3A%2F%2Fwww.shelbylentz.com%2F&amp;v=R6pIkiXTU-A" rel="noopener noreferrer nofollow">https://www.shelbylentz.com/</a><br /><br /></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:29:0242The Champions for HD Podcast - Speech-Language Pathology with Paige Wikmanfull<![CDATA[The Importance of a Support System & Being Kinder to Ourselves with HD - Kya Rawlins]]>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.

Today I am joined by Kya Rowlins. She shares her journey with HD in her childhood through her mother's battle with the disease, and her life being at-risk.
Listen to Kya's episode to learn more about how she is a Champion for HD!

Follow Kya:

https://www.instagram.com/kya90/ 

Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/


Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

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]]>Buzzsprout-8961248Mon, 02 Aug 2021 15:00:00 GMT<p><b><em>**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.<br /></em></b><br />Today I am joined by Kya Rowlins. She shares her journey with HD in her childhood through her mother's battle with the disease, and her life being at-risk.<br />Listen to Kya's episode to learn more about how she is a Champion for HD!<b><em><br /><br /></em></b><b>Follow Kya:</b></p><p><a href="https://www.instagram.com/kya90/" rel="noopener noreferrer nofollow">https://www.instagram.com/kya90/ </a></p><p><b>Follow Champions:</b></p><p><a href="https://www.championsforhd.org/" rel="noopener noreferrer nofollow"><b>https://www.championsforhd.org/</b></a></p><p><a href="https://www.instagram.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/championsforhd/</b></a></p><p><a href="https://www.facebook.com/championsforhd/" rel="noopener noreferrer nofollow"><b>https://www.facebook.com/championsforhd/</b></a></p><p><br /></p><p><b>Follow Shelby:</b></p><p><a href="https://www.instagram.com/shelby_lentz/" rel="noopener noreferrer nofollow"><b>https://www.instagram.com/shelby_lentz/</b></a></p><p><a href="https://www.shelbylentzmusic.com/" rel="noopener noreferrer nofollow"><b>https://www.shelbylentz.com/</b></a></p><p><a rel="noopener noreferrer nofollow" href="https://www.championsforhd.org/donate">Support the show</a></p>no01:36:16212The Importance of a Support System & Being Kinder to Ourselves with HD - Kya Rawlinsfull