<![CDATA[Copper & Clarity: Conversations About Wilson Disease]]>Copper & Clarity: Conversations About Wilson Disease is a podcast that brings Wilson disease into focus through real stories, expert insights, and practical guidance. Each episode features guest interviews with people living with Wilson disease, caregivers, or clinicians to help you better understand the condition, navigate care, and take an active role in disease management. Created by Orphalan in partnership with the Wilson Disease Association (WDA) and hosted by WDA President, Rhonda Rowland, this is a space for community learning and connection that empowers individuals in becoming confident self-advocates. Be sure to subscribe on Spotify, YouTube, or Apple Podcasts!

]]>www.orphalan.comRiverside.fm (https://riverside.com)Thu, 10 Sep 2026 22:44:54 GMTTue, 25 Aug 2026 05:41:32 GMT60Orphalan<p>Copper &amp; Clarity: Conversations About Wilson Disease is a podcast that brings Wilson disease into focus through real stories, expert insights, and practical guidance. Each episode features guest interviews with people living with Wilson disease, caregivers, or clinicians to help you better understand the condition, navigate care, and take an active role in disease management. Created by Orphalan in partnership with the Wilson Disease Association (WDA) and hosted by WDA President, Rhonda Rowland, this is a space for community learning and connection that empowers individuals in becoming confident self-advocates. Be sure to subscribe on Spotify, YouTube, or Apple Podcasts!</p>episodicOrphalankatie.burns@smithsolve.comno<![CDATA[Episode 1: Delayed Diagnosis: Missed, Dismissed, and Diagnosed]]>Host Rhonda Rowland, President of the Wilson Disease Association, explores the journey to a Wilson disease diagnosis with Dr. Michael Schilsky, a hepatologist from the Yale New Haven Transplantation Center, and Danette, a person living with Wilson disease.

Key topics:

What is Wilson disease (03:15)

The role of copper in the body (08:12)

A visible sign of Wilson disease in the eyes (11:39)

Tests that lead to a Wilson diagnosis (14:51)

Centers of Excellence (18:00)

Danette's first signs and symptoms (21:46)

The journey through multiple doctors (27:22)

Relief in diagnosis and advice for others (39:39)

 

For more information about Wilson disease, to find resources, and to see upcoming community events, visit wilsondisease.org.

This podcast is created by Orphalan (orphalan.com) with collaboration from the Wilson Disease Association. Podcasts are for information only and do not constitute medical advice. This episode is intended for a U.S. adult audience.

]]>6a66ed12-2eaf-4a78-aeca-af18866bb354Tue, 25 Aug 2026 14:05:59 GMT<p>Host Rhonda Rowland, President of the Wilson Disease Association, explores the journey to a Wilson disease diagnosis with Dr. Michael Schilsky, a hepatologist from the Yale New Haven Transplantation Center, and Danette, a person living with Wilson disease.</p><p>Key topics:</p><p>What is Wilson disease (03:15)</p><p>The role of copper in the body (08:12)</p><p>A visible sign of Wilson disease in the eyes (11:39)</p><p>Tests that lead to a Wilson diagnosis (14:51)</p><p>Centers of Excellence (18:00)</p><p>Danette's first signs and symptoms (21:46)</p><p>The journey through multiple doctors (27:22)</p><p>Relief in diagnosis and advice for others (39:39)</p><p> </p><p>For more information about Wilson disease, to find resources, and to see upcoming community events, visit <a rel="noopener noreferrer nofollow" href="http://wilsondisease.org" target="_blank">wilsondisease.org</a><a rel="noopener noreferrer nofollow" href="https://wilsondisease.org/" target="_blank">.</a></p><p>This podcast is created by Orphalan (<a rel="noopener noreferrer nofollow" href="http://orphalan.com" target="_blank">orphalan.com</a>) with collaboration from the Wilson Disease Association. Podcasts are for information only and do not constitute medical advice. This episode is intended for a U.S. adult audience.</p>no00:44:0111Episode 1: Delayed Diagnosis: Missed, Dismissed, and Diagnosedfull